For families who have been caring for an adult with a developmental disability for decades, the word “respite” can carry enormous weight. A few hours — or a weekend — where someone else is responsible. Where you can sleep, breathe, or just be something other than a caregiver.
It exists. And for many families in California, it’s funded.
Why respite is a care need, not a luxury
Disability caregiving is long-term by definition. Many families have been providing care for 20, 30, or 40 years. Research on family caregivers of adults with developmental disabilities consistently shows high rates of chronic stress, depression, and physical health problems. Respite is essential maintenance.
Funded respite through the Regional Center
California’s Regional Center system funds respite care for families of individuals with qualifying developmental disabilities. Through the Individual program plan (Ipp) process, families can request in-home respite services — a trained respite worker who comes so the primary caregiver can have real time off.
To request it: contact your Regional Center service coordinator and request that in-home respite hours be included in the Ipp. If respite is already in the plan but hours aren’t adequate, request an Ipp update.
What good respite care looks like
For adults with developmental disabilities — particularly those with autism, behavioral needs, or limited communication — the respite provider needs to understand the individual’s communication style, behavioral needs, and preferences.
Beyond Regional Center: other respite options
California’s Caregiver Resource Centers provide education, counseling, and limited respite assistance. IHSS may provide personal care hours that free up family caregiver time.
Contact Care partners — we work with Regional Center families and provide in-home respite for adults with developmental disabilities throughout Orange County.